ey started messing with him. He had a sleep study done there and luckily all is well and he no longer needs to be on the concentrator at night. What a relief! That's just one less piece of equipment around here. I am running out of room! I was very suprised to see all of the stuff a sleep study entailed. He actually slept really well considering all of the things he was hooked up to. B
efore his surgery his Neurologist Dr. Sullivan stopped by to say hi and see how Jayden was doing. His seizures have been the same for awhile now. Nothing was new to report to him. 
A representative from Child Life at UCSF came to visit Jayden and see if there was anything they could do to entertain Jayden. They typically brings toys or books to the kids and help them understand procedures that they are about to go through. Jayden got a bubble machine t
hat he could control with a switch. That was pretty fun! The bubbles were everywhere! Jose showed up bright and early Friday morning and brought Jayden's doll Larry. Jojo sent it with Jose so that Jayden wouldn't have to go to surgery alone. The nurse was even nice enough to give Larry a name tag so he could be there w
ith Jayden. I thought that was really sweet. Dr. Ree, Jayden's GI, was very nice and explained the procedure in detail to us. Although I was apprehensive I knew that Jayden was in good hands. Jayden did very well in surgery. Everything went as planned and the g-tube was placed high enough as not to affect him wearing really cute clothes. You know that is re
ally important. LOL. Jayden stayed in recovery for a couple of hours while he woke up on his own. But the minute we went back to his room I knew something was wrong. He spiked a 103 fever and got really bad chills. He was screaming and was in lots of pain. They gave him morphene and tylenol right away. Then decided that he needed to have an x-ray of his stomach to make sure that everything was in it's place. This was just a precaution, they were concerned about the fever. The x-ray came back normal and they just decided to hold off his feeds for a little bit longer. By Saturday afternoon we began to give Jayden 1 ounce of pedialyte per hour. He tolerated this well and we were on to pediasure. By Sunday he had tollerated 2 feeds of pediasure and everyone felt confidant that I could take him home and take care of him. I wanted to get home as quickly as possible, afraid that the longer he was there the more at risk he was for getting sick by someone else. We are home now, adjusting to a new way of life. The feeds are taking longer than I expected. But I am told that as he gets used to it the time will decrease. He is still in pain, a little whinny from time to time. But that is to be expected. He is my little trooper! It amazes me how fast he is able to bounce back. We are just going to take this adjustment one day at a time. God is good, He made Jayden well enough for this surgery and brought him home safely. I am grateful.
hat he could control with a switch. That was pretty fun! The bubbles were everywhere! Jose showed up bright and early Friday morning and brought Jayden's doll Larry. Jojo sent it with Jose so that Jayden wouldn't have to go to surgery alone. The nurse was even nice enough to give Larry a name tag so he could be there w
ith Jayden. I thought that was really sweet. Dr. Ree, Jayden's GI, was very nice and explained the procedure in detail to us. Although I was apprehensive I knew that Jayden was in good hands. Jayden did very well in surgery. Everything went as planned and the g-tube was placed high enough as not to affect him wearing really cute clothes. You know that is re
ally important. LOL. Jayden stayed in recovery for a couple of hours while he woke up on his own. But the minute we went back to his room I knew something was wrong. He spiked a 103 fever and got really bad chills. He was screaming and was in lots of pain. They gave him morphene and tylenol right away. Then decided that he needed to have an x-ray of his stomach to make sure that everything was in it's place. This was just a precaution, they were concerned about the fever. The x-ray came back normal and they just decided to hold off his feeds for a little bit longer. By Saturday afternoon we began to give Jayden 1 ounce of pedialyte per hour. He tolerated this well and we were on to pediasure. By Sunday he had tollerated 2 feeds of pediasure and everyone felt confidant that I could take him home and take care of him. I wanted to get home as quickly as possible, afraid that the longer he was there the more at risk he was for getting sick by someone else. We are home now, adjusting to a new way of life. The feeds are taking longer than I expected. But I am told that as he gets used to it the time will decrease. He is still in pain, a little whinny from time to time. But that is to be expected. He is my little trooper! It amazes me how fast he is able to bounce back. We are just going to take this adjustment one day at a time. God is good, He made Jayden well enough for this surgery and brought him home safely. I am grateful.
No comments:
Post a Comment