Jayden's new gate trainer

Last Friday, Jayden finally got his equipment that we have been waiting for since January. He now has a gate trainer. The gate trainer is going to help Jayden learn to walk. It gives him lots of support and teaches him how to hold himself up correctly (balancing on both legs equally). He can only be in as long as he is willing to work. Once he starts to get tired or lazy I have to take him out. He absolutely loves it. He is able to take a few steps correctly and the rest are scooting forward using both legs. He also has a brand new bath chair. Since Jayden can't sit up by himself completly the bath chairs allows him to sit up and feel secure in the bath tub. He loves taking a bath with Jojo. The last thing he received was his customized stroller. This piece is important because it constricts him in his chair and doesn't allow him to side sit. He has to sit up straight which is really good for his back and trunk control. Lastly, Jayden has learn something new. He knows how to tell me no by shaking his head back and forth. He does it at such appropriate times that I have to turn away so he won't see me laughing. I give him his meds he tells me no no no. I try to feed him food, no no no. But I can't wait until we go to UC San Francisco so he can tell Abbie (Dr. Collins) no no no when she tells us what the next yucky med is going to be. Love, Brandy

Welcome to Jayden's Special Page

Hello Everyone! Thanks to our friends the Simmer's, Jayden now has his very own special page! As you probably already read Jayden had a really hard night last night. But I am happy to report that he is recovering quite well. He gave us a scare last night when he had a reaction to the Diastat (med I use to stop seiz). But today he was able to drink his bottle and even eat dinner. He is still really loopy but it hasn't affected his smile. Dr. Collins (neurology UCSF) called today and we discussed different options regarding Jayden's meds. For now we are going to start giving his meds 3x's a day instead of 2. And we are also going up on his Keppra. We are both concerned about his reaction to Diastat. Jayden's seizure are getting longer and requiring more diastat. This is a major concern for us becausDiastat is the only way I can stop a seizure, if I didn't have it we would be calling 911 all the time. The only thing we can do now is work on meds and try to control the seizures as best we can. There is always a concern when seizures are as prolonged as Jayden's are. It can be very dangerous. Thank you for your prayers and kind words. Until next time.....Love and prayers, The Correa's