Sunday, August 27, 2006

Daddy let Jayden where his hat! This was just before surgery and he was still smiling :)
This is our favorite nurse this time around Kali. She was so good at making me feel comfortable enough to leave Jayden alone with them. Thanks for everything Kali!!
There are so many people to thank. Nina Anne, Honey, and Teacher Becky thanks for coming up there and praying for me. And thanks for the goodies too! Pastor Mike your a trooper thanks for the visit. I wish I had taken a picture of it. Stacey our child life specialist your awesome I love the scrapbook. Winnie Jayden must of liked you best since he performed for you each time he saw you LOL. Dr. Perry and the rest of the team, your the best. Abbie thanks for listening to me and giving me advice. HUTCH you are AWESOME! Thanks Little Wishes for the Radio Flyer, that program is wonderful for the kids. Thanks Simmer family for visiting and being there for me. Thanks Erica and Moe you got lost but you made it! Thanks Grandpa Joe, Renee, Mamaw, Aunt Lori and everyone else who helped with JOJO and the rest of the gang. Thank you Tessa for playing BINGO for Jayden. Brittany you are a soldier as well, hang in there I am sure we will meet up again. Jamie Severson you really go above and beyond, thanks for thinking of us. Barbara Case you were always thinking of us and helping things go smoothe. Social workers are AWESOME! Aunt Linda and Uncle Gary you have lifted a weight off my shoulders thank you.

Mamaw and Aunt Linda came to visit me!

Most of all thanks Jen so much for taking Jayden on. I know he will be one kid you'll never forget. We appreciate you! And everyone else I didn't mention. Thanks so much for all of your prayers and phone calls. I couldn't have made through without you. Jayden is my Lil Soldier (thanks Brittany) he is stronger than anyone person I know. He pushes us through each day and I thank God everyday for trusting in me enough to give me this special lil guy.
Love,
The Correa Family

While we were at UCSF we had a very special visitor. Jayden's girlfriend Jacy came all the way from Arizona just to visit him. We have yet to get a picture of these two while Jayden is actually awake. Jody, Jacy's Mom was a life saver. She came straight the hospital and brought snacks and caffiene. She also treated me to a massage at a salon in SF. Thanks Jody your the best!
This is Jayden with his crazy hair and his favorite doll named "Larry". He is named after his real lil buddy Larry C. who has been his roommate more than once at SF.
Check out those cheeks! What a cutie pie!
When Jayden first got to the PICU at UCSF he was intibated. Jayden got to ride in yet another helicopter while Mommy drove like a crazy woman to meet him there. By the time I got there he looked really puffy. I was really scared because I had never seen him like this and I hope I never do again. Thankfully he was extabated about 12 hours later. Trust me it was a long 12 hours. And when he woke up and was able to sit up in his chair I was soooo excited! The next night day was Jojo's 5th birthday party and I was so bummed not being able to be there. But thanks to all of you his birthday wasn't ruined. Thanks so much for helping out. The Neuro team headed by Dr. Jen Armstrong-Wells and Dr. Hutchinson (Hutch) got the ball rolling quickly and came up with the plan to go forward with the VNS surgery. They fell in love with this kid, what's not to love? Hutch made sure to come by and show love everyday and Jen bought him some new Pj's for the long hospital stay. The first test they did was an EEG. An EEG is where they placed leads on his head and monitor his brain waves. When they place the leads they use this gel which leaves his hair sticky. Mommy got bored and decided to give Jayden a new hairdo. I thought it was cute. What do you think?

JAYDEN AND HIS VNS

Jayden has been home for a little over a week now. Despite having 3 relatively short seizures since his surgery, nearly 2 weeks ago, he is doing great! This is the toughest kid I know! For those of you who don't know the whole story........ Jayden was flown to UCSF on July 29th after having a seizure that lasted 2 hours. He was admitted in to the Pediatric Intensive Care Unit and remained there for a total of 3 weeks. It was very clear to the Pediatric Neurology Team that Jayden was running out of options as far as medicines go so they decided that surgery was the next step. Jayden had surgery on August 15th to have a Vagus Nerve Stimulator placed. The goal of this treatment is to decrease the number and severity of seizures while minimizing the drug side effects to increase the quality of life for Jayden. How does it work? The Pulse Generator (battery) delivers small amounts of electrical current to the Vagus nerve intermittently (30 seconds on 5 minutes off) Jayden doesn't feel a thing. This goes on 24 hours a day 7 days a week. We don't expect to see results right away. Infact, the VNS tends to work better the longer it is in. So a year from now is when we should start seeing our best results. As far as I am concerned it is already helping. I can't even remember the last time Jayden has a 5 minute seizure. Even if the seizure don't go away completly (I don't expect them to) I will be happy if they are controlled enough for me to take care of Jayden at home:) Dr. Perry was the Neurogsurgeon who took such great care of Jayden. Thanks Dr. Perry and Caroline and the rest of the team for taking such great care of Jayden. He's healing nicely.