Thursday, July 20, 2006

3 In 1

That's 3 seizures in 1 week. Last Saturday while we were visiting with family Jayden had a 22 minute seizure. He had a 20 minute seizure yesterday and a 5 minute seizure today. He's kind of had a small cold that started on Monday which may or may not have triggered them. Luckily for us I didn't have to call an ambulance but was able to control them at home. Nonetheless 3 in 1 week is alot. I have to take him for his labs Friday morning and expect for the Dr. to call me sometime tomorrow to let me know if they feel I should go up on any of his 3 meds daily that he is already taking. On a lighter note, yesterday before the seizure I was working with Jayden trying to get him in a crawling position with his butt in the air. He actually pushed up with his arms!!!! He didn't hold the position for more than a couple of secnds but that was a HUGE accomplishment for him. I am really determined that he is going to crawl one way or another. He really gets mad at me when I work with him but I try not to work him too much at one time. I don't want to discourage him. I still pray everyday that God will heal him and take away those nasty seizures. It's hard not to get discouraged. I can't imagine this little innocent child having to go through this his entire life. But he's strong and he'll be fine! Thanks for your thoughts and prayers. Love, Brandy

Thursday, July 06, 2006

Another Trip To The ER

Last night Jayden had a seizure requiring me to call 911. Fortunately it only lasted 20 minutes and stopped shortly after arrival. Jayden is doing well and recovering quite quickly. Today we took a trip to San Francisco to meet our new neurologist Dr. Jennifer Armstrong-Wells. She has some huge shoes to fill but it's still early. We discussed Jayden's care and how things have been going. She will be working on scheduling a MRI soon. We may or may not see anything yet (a cortical malformation that is causing the seizures) but I think it's worth a try. My Mom had her 5th set of chemo today. I was actually suprised they went ahead with the treatment considering how low her blood count was. She's doing well just a bit tired. Her tumor has shrunk rapidly. We are very pleased with her progress. I will personally talk to her doctor tomorrow morning and update everyone. That's all for now. I hope everyone had a blessed 4th of July! Love, Brandy

Monday, July 03, 2006

***Happy 4th Of July***

I hope everyone is enjoying 4th of July. It's a time when we can get together with family friends and discuss many things thanks to the soldiers who fight for our country! Let's all celebrate! Jayden and I will be celebrating with a BBQ at Tia Rosa's and Uncle Jim's house. The kids are really excited about the fireworks. I can't wait to see what Jaydent thinks. I am not sure he will be thrilled about the noise. Saturday Jayden had another seizure but praise God it was only 10 minutes long and we didn't have to call 911. That is a true blessing. He has already recovered from it. Our friend Becky Mizner and her husband Jim have been really busy these days. She recently met with President Bush who thanked her for all of their efforts with "Packed with Pride". They,along with volunteers, pack boxes and send them to the soldiers who are fighting for our country. This great effort is all done in honor of their son Jesse Mizner who died in this war. In just a few months they have the honor of going to Kuwait to visit the soldiers there. When I asked her if she was nervous to go she said, "No way. I am excited! I can't wait to see how many soldiers I can hug and tell thank you." Isn't that awesome! They are sending her there so the soldiers can thank her but she can't wait to thank them. Becky is one Mom I really look up to. Thanks for supporting our troops and thanks to the Mizners. God bless everyone. If you would like to make donations to packed with pride please visit the website at http://packedwithpride.com/ Brandy