Jayden Sick Again

A couple of weeks ago Jayden aspirated while attempting to eat pureed foods at school. I could tell right away that afternoon that he was in desperate need of some breathing treatments. I had no idea that it would turn into aspiration pneumonia. Initially I dealt with the crackly sounds coming from his chest at home like I always do. I always hesitate to go to the doctors office for fear he will get sick from one of the other patients. After a week of breathing treatments and not much progress I decided that it was time to go see our Pediatrician. Dr. Cahill wasn't available so we saw Dr. Waters. All the docs at Pediatric Associates of Stockton are awesome with Jayden. She suggested antibiotics, chest x-ray, and bromide to help clear up his wet cough. The x-ray confirmed aspiration pneumonia and we decided to check back in a couple of days. Unfortunately Jayden couldn't hold off more than 24 hours before I was forced to call Dr. Waters. He took a turn for the worse and started vomiting, which was strange for him. He couldn't hold anything down no matter how much I slowed up the feeds. Dr. Waters decided that even though I was very well equipped to take care of Jayden at home it was time to admit him and get some extra fluid going through his port. I had never seen Jayden have so many secretions. He was so extremely juicy and was having a hard time swallowing. The following day Jayden really scared me when he vomited old blood. At first I was worried but then I just got upset because I seemed to be the only one worried about it. G-tube complications, it happens.... that was their response. They started him on Ranitidine which was supposed to settle his stomach. It is actually used for acid reflex. It seemed to work a little bit. A day later Jayden was sent home to finish recovering at home with Mommy as his personal nurse. He still couldn't tolerate his normal feeds. I had to give him 30 cc's (1 oz) per hour until I could gradually bump it up as he could tolerate it. It has almost been one week since he came home and he's just now back to his normal feeds. In July, Dr. Sullivan (Neurologist) started Jayden on Banxel, which has side effects including vomiting. We decided during this whole mess to take Jayden off this med. This was good because the vomiting stopped but bad because he had a very hard time getting it out of his system. He has been irritable and whinny all week. His movement disorder has been so out of whack that he sweats through his clothes and wakes up with his whole head soaking wet. Each day it gets better. This week I started Physiology. Thank God Jayden is better because I don't know what I would do. This is my last class required before I apply for the nursing program in April. Episodes like this one make me realize how wonderful the good days are and how much I dread the bad ones. God is good because we seem to have more good days than bad days. I pray it stays that way.