Wednesday, December 26, 2007

Looking Back At 2007

We have been blessed so much this year. 2007 started out rocky when Jayden all of a sudden quit being able to sit up. He started loosing skills and we found out he was having Infantile Spasms. I was devistated but friends and family were determined. Thanks to Jody emailing Jayden's story anywhere and everywhere he became famous. Jayden was on the Fox 40 news twice. Triad Investment group was responsible for making our house wheelchair accessible and giving us a ramp, and just in the nick of time. Our cousin Christina called me and wanted to plan a fundraiser for Jayden. Thanks to her and Gloria of Antonio's Catering (and many, many others) we made it happen last September. It has been one blessing after another. This year has been amazing in so many ways. I am so grateful to all of you who continue to follow Jayden's journey and pray for him to have the best life possible. We as a family our doing wonderful, infact just before Christmas Jose got a raise! He is so excited and it is well deserved. Thanks honey for all of your hard work. We are looking forward to 2008! God bless you all, Brandy My New years resolution.......keep up the blog :)

Jayden's Got A Brand New Chair

Jayden just received this chair a couple of weeks ago. It's actually kind of cute. I love his name on the chair. Jayden likes it, he fits in it perfectly. This chair can tilt back if needed and is really easy to manuever. The only bad thing is that it doesn't fold down like the old one did. I had to take half of the backseat out of my car just to fit it in there. It's much heavier too! I am working on trying to get some kind of lift that will reach down and pick it up and put it in the car for me. A wheelchair ramp isn't an option at this time because insurance won't pay for it and the cost is well over $20,000. I'll worry about that later when I can no longer lift him. He is getting to be a Chunky Monkey! But Momma is strong!

Merry Christmas

MERRY CHRISTMAS!
This year we had Christmas at our house. My Mom (you gotta love her) came to my house extra early on Christmas morning to cook a wonderful meal for our entire family. It was really nice to have everyone together in our home. The kids really had a nice Christmas. Jojo was so cute, he couldn't wait for Santa to come. We made cookies the day before and he decorated a few extra especial cookies to be left out for Santa. And to his suprise Santa wrote him a nice little note thanking him for the cookies. He was able to read the note all by himself, it was priceless!
Jayden's Nina and Nino bought him a very special book called, "The Legend Of The Candy Cane". It's a very special book that tells us how a candy cane can represent Jesus and all He does for us. We will make it one of our family traditions to read this book to the kids on Christmas Eve. God bless you all.
Love,
Brandy

Jayden's First Day Of Preschool

I have been dreading this day for the past 6 months. I just can't stand the thought of Jayden going to school with other kids, sharing equipment,and laying on the same surfaces. When people started preparing me that when he turns 3 he would move on and need to go to school I made up my mind that he wouldn't be going alone. Jose was having a hard time with it too. He felt much more comforted when I said I would be with him. So on November 26, 2007 Jayden and I went to school. Daddy took an early lunch and met us there. His teachers name is Amy and she is AWESOME! My fear has now turned into excitement. I can't wait to see how well Jayden will be doing 6 months from now. This is a new adventure for us.

Happy Thanksgiving

Jayden just got out of the hospital and is still feeling icky! But we are home and that is definately something to be thankful for. Just wanted to wish you a blessed day of spending time with family and friends. God bless, The Correa's

Home Nursing

Well after we made it through our fun birthday weekend things kind of went down hill. I called Dr. Cahill to let her know that Jayden was STILL not eating or drinking ANYTHING. I didn't want him back in the hospital because of the flu season. If I could just get some fluid in him... I suggested home nursing. I thought a nurse could come out, access his port, stay for an hour while he got some fluid in him. Instead what did I get? I got a nurse who came out and watched me access the port, he then decided that since I could do that I could run the pump myself :0
It was time for a crash course in running an IV pump. Nursing 101 here I come! At first I was in shock, but after I wrapped my brain around what he was telling me it kind of became fun. It was definately a challenge and I am glad I did it. I would've been even happier if the whole event had kept him out of the hospital. After 2 bags of IV fluid Jayden threw up. He was coughing and gagging so hard that he couldn't keep it down. The next morning he was admitted to the hospital here locally. He was there until Thanksgiving afternoon. My Mom was wonderful enough to come to my house early that morning and cook Thanksgiving dinner for me and my family. Jayden was sick a total of 4 weeks. He even missed what should've been his first week of school. He's much better now.

Sunday, December 23, 2007

The Simmers Come To Stockton

The Simmer's finally made it to Stockton! And just in time to help us celebrate Jayden's 3rd birthday. We were so excited for them to get here and we enjoyed their company so much! Jacy was so sweet and loving with Jayden. And we even got to meet the latest addition to their family lil Jake who is only 2 months old. He was so sweet, practically perfect in every way. Jacy talks so much and is practically running all over. She did however take time out to watch Jayden's slide show and pointed at his picture and said, " I love that kid!" Too cute! It was a wonderful weekend. We plan on visiting each much more often this coming year.

Wednesday, December 12, 2007

Happy Birthday Jayden!

Happy birthday lil Jayden happy birthday to you! Yay! Can you believe it has been 3 years already? And we are so grateful to have been given the best gift of all, our son Jayden who is always inspiring ourselves and others. We were so excited because Jayden's girlfriend Jacy, her new baby brother Jake, and ofcourse Jody and Jay were here to celebrate all the way from Arizona. Jayden wasn't feeling well but he was a trooper. It was so nice to see the Simmers and Jacy was absolutely adorable. While she was here she was looking at pictures of Jayden and said, " I love that kid!" What's not to love? And her little brother Jake was perfectly healthy and extremly handsome!

Jayden's Has Been Sick

Poor Jayden started fighting a cold in the beginning of November. As you already know when Jayden gets a cold it is never anything easy. I started giving him breathing treatments and antibiotics but it wasn't helping. His flem got so thick that this poor kid couldn't eat or drink. I was really worried about him. On Nov 12th I took him to see Dr. Cahill and she wanted him admitted on suspicion of pnemonia. He was admitted that night and had an x-ray done and blood work. He didn't have pnemonia thank God. But he was still having a hard time eating. He was sent home on the 14th. It was back to breathing treatments and more meds. I was really worried that he would spend his 3rd birthday in the hospital. His girlfriend was coming to visit so that wasn't an option. It got to the point where I was ready to pull my hair out because I couldn't even keep him hydrated. I was reduced to TRYING to syringe 12 ml each half hour. It was horrible! But he is a trooper and got through his birthday weekend hospital free!

Jayden Meets New Doc

On October 30th Jayden met the new Eptologist at UCSF. His name is Dr. Sullivan and he comes to us all the way from Philadelphia Children's Hospital, which is one of my pics for another opinion. I was very happy to meet him and even happier that he had some ideas of new things for us to try. His first idea was to try to give Jayden an oral steroid called Prednisone. You have probably heard of this steroid, typically it is used for breathing problems. In Jayden's case we are using it to help his brain. In some cases they have used this drug to kind of "re-boot" the brain of a child like Jayden. In extremely wonderful cases during the course of a one month trial they see huge gains in the child. Unfortunately this wasn't the case in Jayden. The steroid was nice because his breathing was great for a month (no wheezing) and he seemed stronger. He was holding his head up very well and seemed to work harder when trying to establish head control. But since it wasn't a good enough result we were forced to take him off. This drug has horrible side effects and it just wasn't worth any risk to Jayden's otherwise perfect health. After the one month trial we were off to SF for another EEG to test the findings. It was then decided in November to start a new trial on another drug. This time it was B6 which has no side effects. We scheduled another EEG to see if it was improved at all. This EEG won't be done until the beginning of January. I am excited to try this new drug.

Happy Halloween

Hello everyone! We had big plans for Halloween. UOP had a Halloween party on their campus where students lead groups of kids around the campus to different buildings who were handing out candy. Jojo went as Captain Jack Sparrow and Jayden was Ratatouille. Jeana was a cheerleader/football player and Andres was Nacho Libre (that was pretty funny). Later that night we went trick or treating wtih Jayden's Nina Anne's family. It was fun to watch the kids get so excited for one small piece of candy, usually one they didn't even like. I think just the action of getting dressed up and walking around and watching the rest of the kids in all of their cute costumes was really fun. Jojo was running from house to house and couldn't wait to see what would be put in his bag. While Jayden took the more laid back approach sitting in his chair watching all of the excitement. When we would approach each door the people thought they were adorable and wanted to give Jayden candy too. I think Daddy benfited from that, lol.

Fiesta Fundraiser A Success.

What a fun night! Many thanks to everyone who came out and joined us for a very special cause. The weather was great and the company was fine. What a success! Special thanks to Gloria Olivarez of Antonio's Catering for loaning us her backyard and making this event a success. Also special thanks to the Jayden's Wish Committee. I am so impressed with all of your hard work and dedication. You all went above and beyond to make our dinner fun and successful. I know that everyone who was there was definately impressed! I LOVE YOU GUYS! Thank you to Casa Mexicana in Lodi, Arroyo's, and Dos Hermanos Market for donating food. Dj Jeff The Music Chef you rocked! Luis and the guys, thanks for the beautiful music. There are so many people to thank and I can't possibly mention them all but I hope everyone knows how special you all are in our hearts. Because of you we can purchase things for Jayden that insurance won't pay for. I have already ordered his swing for our house. It's a huge thing and will be great for him. It was really fun to walk around and talk to everyone who was there. I tried my best to introduce myself and Jayden to as many people as possible. Thank you all again. We love you! Here are pics from that night.